September 20, 2012

The Room Built With Love

Posted in community, family, friends, Kat, personal at 7:36 pm by jimazing

In order to setup this story, I offer this extremely abbreviated version of a very long and arduous journey: Our youngest daughter, Kat, has been fighting cancer for the last year and a half. If you want to know more about that journey, click here.

Last week, in the hospital, Kat’s legs and feet began retaining fluid and swelling. When she saw this and remembered last year when the swelling prevented her from walking well, when she had to be carried up and down the stairs. She cried softly and said with resignation, “I can’t believe this is happening. I do not want to be carried up the stairs again!”

Each of us has emotional triggers; words or situations that cause us to predict what is coming based on our past experiences. Then we feel based on what we believe. Kat believed this was coming and was upset because there was nothing she could do to stop it. I have my own emotional triggers, but this was not one of them. I could see the passion in her desire and I resolved to never carry her up those stairs again!  But how? All of our bedrooms are upstairs.

The key was to prepare a room for her downstairs. The room I had in mind has been transformed several times already. First it was a computer room, then a formal living room, then a playroom. The room was wide open to the foyer, so it offered no privacy at all. I imagined that if we could temporarily wall off the large opening with a closeable door, it might just work. I imagined how that might be done and thought of how to make it happen. I planned to start working on it as soon as I got home, but on Saturday, Kat decided it was time to stop the chemo and come home with us. Suddenly I was out of time. It could not wait until I got home; this remodeling project needed to be completed right away!

Sunday morning, I sent a text to my best friends explaining the situation and asking if they knew anyone who could help. They immediately went into action. I was excited to learn that one friend’s father-in-law was visiting (his reputation for craftsmanship precedes him). I described the ultimate goal as being privacy for Kat without having to go upstairs and trusted them to make it happen. After some quick brainstorming and a few questions back and forth, the plan was complete, the materials were purchased and the work began. They thoughtfully sent photos so we could enjoy the progression of the work. I told the story and showed the pictures to Kat’s nurse. Word spread and the staff was just amazed. The phrase I kept hearing was, “No way!”  In a few hours, the work was done!

Now Kat is home. She is comfortably settled into what is now the largest bedroom in the house. The representative from the medical supply came to install her hospital bed and other sundry equipment. He said he has seen a lot of modifications made for family members to be comfortable at home. However, he had never seen anything of this magnitude.

Sometimes when somebody loves you
Miracles somehow appear
And there in the warp and the woof is the proof of it
– from Charlotte’s Web (the movie)

Building a wall is not a miracle. The miracle is in the loving friendship of our community.  This is just one miracle story among many. So many folks are weaving their threads into our lives to support us with gifts of grace, prayers, well wishes, lawn mowing, meals, moving help… Much thanks.

September 10, 2012

Cancer

Posted in family, Kat, personal, poetry at 8:30 pm by jimazing

Cancer.

Becoming harder each day to push back the inevitable pressures of life; the pressures common to us all. This awful disease unsatisfied with being compartmentalized. Breaking all barriers, demanding its own

and everything else.

A cancer of attention, a cancer of emotion taking every spare breath, every free moment.

Cancer itself annoyed at the prospect that attention might be paid to a friend, a car repair, a moment of peace with a loved one, a longing for normalcy. Vacuuming up all emotional energy. No patience. No margin.

Like physical cancer that disguises itself as a normal cell and grows with a vengeance, this parallel “cancer” takes normalcy and turns it inside out. Nothing else matters!

Surprised… a moment of calm. A butterfly visits the lantana. I planted that lantana next to the vegetables; the basil that made so much yummy pesto, the tomatoes that need no explanation. Butterfly dips its straw in and sucks on its lantana smoothy. The crickets chirp. Clarity, sanity… for a moment.

The moment snatched by…

Cancer.